Friends, family and fairy lights

30 Nov

To mark this day, 2 years since Tilda died, we gathered together some friends and family for food and stories. And we lit up our house in her honour. 

Watching the videos of her life heart-wrenchingly showed how much shitty fucking Batten disease took hold as the years passed. But it also showed her bravery and her capacity for joy and it is those moments that we hang on to. 

Thank you for the messages of love and support today.


5 Responses to “Friends, family and fairy lights”

  1. irene December 1, 2015 at 7:07 am #

    Dear Laura, Simon and Maggie,

    this is the fourth attempt and I do not have the words that convey my thoughts to you all and to honour Tilda’s life. So I am just going to send a hug and a kiss O X

  2. mishryper December 1, 2015 at 7:41 am #

    Laurs I don’t know what to say, only that I’m thinking of you, Simon, Maggie and of course sweet Tilda.

  3. Juliet December 1, 2015 at 10:10 am #

    Thinking of all of you, with my love

  4. mardi doherty December 1, 2015 at 8:41 pm #

    Love it Laura, what a beautiful way to honour beautiful Tilda. Light is so powerful, & has such a wonderful sense of hope associated with it. Sending you so much love right now xxm

  5. Mandy December 3, 2015 at 2:45 am #

    Sending love and hugs thinking of you and your fairy lights for Tilda 💕💕💕

Leave a Reply

Fill in your details below or click an icon to log in: Logo

You are commenting using your account. Log Out /  Change )

Google+ photo

You are commenting using your Google+ account. Log Out /  Change )

Twitter picture

You are commenting using your Twitter account. Log Out /  Change )

Facebook photo

You are commenting using your Facebook account. Log Out /  Change )


Connecting to %s

%d bloggers like this: