Archive | November, 2015

Friends, family and fairy lights

30 Nov

   
   
To mark this day, 2 years since Tilda died, we gathered together some friends and family for food and stories. And we lit up our house in her honour. 

Watching the videos of her life heart-wrenchingly showed how much shitty fucking Batten disease took hold as the years passed. But it also showed her bravery and her capacity for joy and it is those moments that we hang on to. 

Thank you for the messages of love and support today.

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