Today we bounce

31 Mar

Today is Batten Awareness Day. Yesterday we marked 4 months since we lost Tilda and in two weeks, Nicole will have marked a year since the loss of gorgeous Jack. Insidious, brutal, heartbreaking. It has to stop.

I am in contact with another lovely Batten mum, Peta, who had a wonderful idea to commemorate this day.

Bounce 4 Batten


Peta’s daughter Mia is a gorgeous 4 year old with a cheeky smile and a mop of blond curls. She was diagnosed with Batten disease in May last year.  You can learn more about Mia here –

So today, we bounce! Maggie and I will get on the trampoline later today and give it our all. We bounce for Tilda and for Jack and we bounce for Mia.

Bouncing for Batten seems like such a good fit for our Tilda who loved the trampoline so very much.

Tilda bouncing


Thank you Peta for this wonderful idea. If anyone does feel like bouncing today, I would love to see it! Post to Facebook, Twitter or Instagram or if you are not into any of those technological wonders, you can email them to me at

Thank you so much for all the messages of love and support yesterday.



5 Responses to “Today we bounce”

  1. Daryl Linnane March 31, 2014 at 10:52 am #

    Can’t ‘bounce’ today ( sometimes I do on a mini tramp ! ) but you are very much in my thoughts, as indeed you often are. Love Daryl

    Sent from my iPad


  2. Juliet March 31, 2014 at 1:22 pm #

    What a great idea. Love to all bouncers (especially the future golfing champ) and their families!

  3. Cally Berryman April 1, 2014 at 5:04 am #

    Love the happy concept.

  4. Nic April 1, 2014 at 9:38 pm #

    Always lovely to find mail from team Tilda, my love to you and family Laura. Nic.xx

  5. Beck Kluppels April 8, 2014 at 9:34 pm #

    You are an inspiration Laura!! We bounce often at our house and now have a wonderful reason to do so. You have always had such a way with words and I often read your posts but am lost for words to reply. Your openness, honesty and strength put my life so into perspective. Love to you and your beautiful family!

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