Today we bounce

31 Mar

Today is Batten Awareness Day. Yesterday we marked 4 months since we lost Tilda and in two weeks, Nicole will have marked a year since the loss of gorgeous Jack. Insidious, brutal, heartbreaking. It has to stop.

I am in contact with another lovely Batten mum, Peta, who had a wonderful idea to commemorate this day.

Bounce 4 Batten

 

Peta’s daughter Mia is a gorgeous 4 year old with a cheeky smile and a mop of blond curls. She was diagnosed with Batten disease in May last year.  You can learn more about Mia here – http://www.miajohannah.com

So today, we bounce! Maggie and I will get on the trampoline later today and give it our all. We bounce for Tilda and for Jack and we bounce for Mia.

Bouncing for Batten seems like such a good fit for our Tilda who loved the trampoline so very much.

Tilda bouncing

 

Thank you Peta for this wonderful idea. If anyone does feel like bouncing today, I would love to see it! Post to Facebook, Twitter or Instagram or if you are not into any of those technological wonders, you can email them to me at teamtilda@hotmail.com

Thank you so much for all the messages of love and support yesterday.

xoxox

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5 Responses to “Today we bounce”

  1. Daryl Linnane March 31, 2014 at 10:52 am #

    Can’t ‘bounce’ today ( sometimes I do on a mini tramp ! ) but you are very much in my thoughts, as indeed you often are. Love Daryl

    Sent from my iPad

    >

  2. Juliet March 31, 2014 at 1:22 pm #

    What a great idea. Love to all bouncers (especially the future golfing champ) and their families!

  3. Cally Berryman April 1, 2014 at 5:04 am #

    Love the happy concept.

  4. Nic April 1, 2014 at 9:38 pm #

    Always lovely to find mail from team Tilda, my love to you and family Laura. Nic.xx

  5. Beck Kluppels April 8, 2014 at 9:34 pm #

    You are an inspiration Laura!! We bounce often at our house and now have a wonderful reason to do so. You have always had such a way with words and I often read your posts but am lost for words to reply. Your openness, honesty and strength put my life so into perspective. Love to you and your beautiful family!

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