Bad nights and better nights

29 Nov

We’ve had both. Wednesday night was not good. Tilda struggled with her breathing and we ended up calling the palliative care nurse at 1 in the morning. After changing her position and administering top up medications, she did improve but her colour was awful and once again we were told that the end was not too far away.
Once again our fighting girl had other ideas.
Since then, her breathing has been better. We have upped the dosage in her driver to minimise the struggling episodes and last night was a better night.
Thank you so much for the amazing messages of love and support that we have received as well as the visits, the food and the shoulders to cry on. It means so much.


Awesome t-shirt courtesy of the lovely Millie


6 Responses to “Bad nights and better nights”

  1. Danielle x November 29, 2013 at 10:19 am #

    Great t-shirt! 🙂

  2. benita crocker November 29, 2013 at 10:21 am #

    And she must be about the coolest kid on the block with that Breeders top on. Rock chick! What an amazing girl you have.

  3. karla akehurst November 29, 2013 at 11:54 am #

    The coolest fighter I’ve ever had the pleasure of knowing! We LOVE you Tilds xxx

  4. Helen Smail November 29, 2013 at 5:15 pm #

    Have been following your blog and everyday i read it hoping that a miracle has happened and there will be photos of Tilda smiling….but there isnt. You are amazing to be writing so honestly…i wipe tears away everytime i read it. I worked at Angliss in Footscray when Tilda started there years ago. I remember she loved the trampoline.

  5. Jennifer Mars November 30, 2013 at 1:34 am #

    You are right, ….your wee Matilda’s beauty shines through, even at this somber time.
    Jennifer Mars

  6. Kirsten November 30, 2013 at 11:46 am #

    What an amazing girl she is!!!
    Lots of love xxoo

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