Time out at the beach

13 Mar

The girls and I have spent the last couple of weekends down in Anglesea, hanging out with good friends and beautiful family. The weather has been so warm, it was great to get down there and get on the beach. I had some lovely swims, Tilda got her feet in the sand but spent much of the time snoozing in the sunshine. Maggie enjoyed hanging out in awesome papsan chair and a relaxing time was had by one and all.

Tilda at the beach

Maggie in the Papasan Chair

Me and the girls











I am saddened to report that it has been another terrible couple of weeks for the Batten community with the passing of 7 year old Dylan, Milos from Serbia and 17 year old Skip. We also learnt that Skip’s sister Puck passed away a few years ago. Rotten, stinking disease that it is. My thoughts are with their families.

Our beautiful Jack continues his fight, with some good days and some bad. The seizures continue to break through, even though he is sedated. There have been some beautiful moments for his mum Nicole though, some smiles and connections which I know she will treasure. We try and visit as often as possible and I love seeing our small ones together, they are even colour coordinated! Please continue to have Jack and his family in your thoughts.

Tilda and Jack sleeping

Health-wise, Matilda has been having a pretty good run of late. We seem to have the vomiting under control and have even been able to increase her feeds. She is cheery and bright. She came home from school yesterday with a Gold Star! Her teacher wrote that if she was at a mainstream school, she would have been sent to detention for talking in class but as this was Glenallen, the rules are different! They are delighted with her vocalisations and the Intensive Interaction program seems to be working really well for her. Although she sleeps a lot of the morning at school, it is such a benefit for her to go each day and we love getting the feedback that she is happy there.

In other news, we have had a few car troubles over the last couple of weeks. It began when I accidentally locked Tilda in the van. On a very hot day. Cue the panic, the fire brigade, the police and an ambulance. For want of a better solution, the fireman smashed the passenger door window. Tilda slept through the entire thing and was completely bemused by all the fuss!

Then, on a drive to visit Nicole, the van started stalling in the middle of heavy traffic. On a very hot day. Cue the RACV (roadside assist), a tow truck and a maxi taxi to get us home! Once again, Tilda slept through most of it and was bemused by all the fuss! She did enjoy the ride home in the maxi taxi though!

Tilda in the maxi taxi

I am pleased to report that the van is now completely fixed and many thanks to the lovely David from Fleetworks who not only covered the cost but delivered the van to our door when the work was complete. It is now running like a dream.

That’s all for the moment. Sending much love to all from all of us.

Matilda and Maggie


7 Responses to “Time out at the beach”

  1. Adam & Chez... Oh, and Jack March 13, 2013 at 11:09 am #

    It’s great to read that Matilda is having a good patch, one that she needs and deserves, as do you, Simon and maggie. Glad the van troubles are sorted, hopefully thee isn’t a plastic bag still taped over where the window was!
    Jack is lookin forward to meeting Tilds and

  2. Carole and Garry Laird March 13, 2013 at 11:19 am #

    Thanks for the update Laura. Glad to hear you have been enjoying the hot weather at Anglesea.
    What a joy the photos of your beautiful daughters are. Thinking of you all.

  3. Juliet March 13, 2013 at 2:42 pm #

    Oh my gosh, car trouble on top of everything else. So glad Tilda had the good sense to just sleep through it. Also very glad the beach is proving so enjoyable for everyone. The photo of Tilda and Maggie and you is lovely. All my love

  4. Di White March 13, 2013 at 5:32 pm #

    It was a delight to see you at the beach Laura and you should add a pic of yourself to the blog because you looked truly beautiful. And considering the 4 hour journey down in long weekend traffic and a baby who was unimpressed with the heat and the delays, I think you deverse yet another gong. These are goegeous photos. Much love as always, Di.

  5. Pete March 13, 2013 at 6:39 pm #

    Hi Laura et al., love the photos, very cute! Glad things worked out well with the van, and looking forward to catching you all over the next few weeks with a bit of luck…

  6. Daryl March 14, 2013 at 8:59 am #

    Beautiful photos Laura especially of your happy girls together and you with them ! I’m delighted for you all that Tilda is doing well at present and that you were able to enjoy some R and R in the sun and warmth at Anglesea. Love Daryl

  7. cally berryman March 15, 2013 at 5:46 am #

    How wonderful to have happy time by the beach.
    The photos say it all, magical.
    What a shcok to lock Tilda accidently in the car.
    It is all swings and roundabouts in life.
    Much love Cally X

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