Sun, sand and splints

19 Nov

I apologise that it has taken me a while to update after the last post – it has been a busy time which is good! I am in countdown mode until Little Bubs makes her appearance and with everything that is going on, time is moving swifly. I have only 3 more weeks left at work then the real countdown begins!

First of all, our appointment with the pediatrician did not unfortunately give us the good news of weight gain that we had hoped for. No loss which is excellent but the no gain is a disappointment especially with the increased ml. To add insult to injury, since the appointment we have had to drop down in mls as we have seen a return of the dreaded vomiting episodes. Only minimal and not nearly as dramatic as previous but we are wary of pushing her too far – better to have less feed and keep it all down then force more and have her throw it all up anyway. She has a slight cough at the moment which I also think is contributing to the gagging.

In my scan and appointment, we were pleased to hear that all is well and the Little Bubs is measuring about 5 days ahead which is a good start towards the goal date of 12/12/12! I am now on weekly appointments.

The weekend before last was a busy one with some interstate guests which was lovely. Friends from our time in Darwin came to stay and we headed down to Anglesea for a few days. Once again, the weather gods played ball and we had two really gorgeous days where we were able to take the small ones down to the beach, Tilda enjoyed putting her toes in the sand but the water was a bit too cold for her!

Last Tuesday we had our appointment at the Orthotics and Prosthetics Clinic to get Tilda’s feet cast for her AFO’s. I was a little concerned but Tilda took it all in her stride (as long as she was able to still see Dora!).

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They should be ready in a couple of weeks. The good news was that the Dr who took the casting said that her feet were actually pretty good and not as bad as they had initially thought.

Her arms and hands are a slightly different story, with definite signs of stiffening. We have some new arm splints for her which she wears to keep her arms straight, this doesn’t seem to bother her too much, although it doesn’t look particularly comfortable.

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We also have had her hand splints moulded at school which will assist with the curling of her fingers – this also doesn’t seem to bother her which is great.

My dear friend Millie’s book, The Thrifty Gardener was launched last Saturday with a wonderful afternoon of plants, produce and people. Unfortunately, Tilda wasn’t doing too well so we decided that she should stay at home but I went and represented the family. I once again urge you to have a look at this wonderful book, it would make a great Christmas present! And not just because Tilda is on the front cover!

On Sunday, Simon and I attended the wedding of a very dear friend which was a very special day. As part of their gift registry, the couple had asked people to donate to TeamTilda which was just amazing and we were very touched by the gesture. Tilda was looked after by her awesome aunt Kylie who took her out and about in the wonder van and did a fantastic job. Thanks Kylie!!

All in all a busy time with more busyness to come!

Much love
Xoxoxo

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7 Responses to “Sun, sand and splints”

  1. Lou November 20, 2012 at 6:34 am #

    What a gorgeous photo of Tilda – she looks sooo happy lazing on her bed xx

  2. Juliet November 20, 2012 at 7:50 am #

    Tilda certainly doesn’t look bothered by the splints, which is marvellous. Hope the vomiting has come to an end and fingers crossed for 12/12/12! Sounds like a good weekend.

  3. cally berryman November 22, 2012 at 6:23 am #

    The photos of Tilda are lovely, her gorgeous smile is heart warming.
    I hope all goes well int he next few weeks. Please make time for your lovely self. Put your feet up and read a trashy magazine. It will soon be extra busy with the new bub. I wish I could rush over and make you a cup of tea and tim tam biscuit and give you a massage.

  4. Di White November 22, 2012 at 9:01 am #

    The cooler weather must be a blessing in the countdown to 12/12/12! I never cease to be overwhelmed by the generosity and support of your many many good friends. They almost redefine the meaning of the words. Much love as always and you’re very much in my thoughts.

  5. Didi November 23, 2012 at 3:25 am #

    Oh my dear friend I’m glad to here that the splints aren’t bothering Tilda to bad she seems in good spirits from looking at the photo. I’m glad all is going well with the new little one that is on her way very soon. Make sure you take some time for yourself I wish I could be there to see you through this beautiful and trying time like in the old time when we were young and carefree. All my love to you my dear Laura know my thoughts are always with you! You are so strong just remember God never gives us more than we could handle. xoxoxxox

  6. Beck November 24, 2012 at 12:12 am #

    Hey Laura

    After flicking through the last Light Blue and now reading your website, as a very lucky mum of 2 healthy girls (Kate is 4.5 and Alicia 2.5 yrs) I couldn’t help be touched by your and Redge’s journey. I so admire your strength and the honesty in your words – you are an amazingly special mum and Tilda couldn’t hope to have 2 more special hearts to standby her. I know it has been a very long time, but I very much wish you, Simon and Tilda all the very best and hoping the 12/12/12 becomes a very special reality!! I am so glad you have so much love snd support behind you. Remember to take care of you at this very special time.

    All my love
    Beck

  7. Anne Bunting December 4, 2012 at 5:57 pm #

    Not long to go now Laura – hope you are getting a bit of rest and that things are settled as much as they can be with Tilda. Take care and lots of love Anne

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