6 Aug

I am currently at home after having a very good nights sleep, about to head back to the hospital where Simon spent the night. Thankfully we did get moved to a ward yesterday morning so it is a little more comfortable for everyone.

Tilda was still pretty miserable yesterday, she slept a lot and you could tell that she was just not feeling very good at all. When I spoke to Simon this morning, he said that she is looking a little perkier so hopefully the antibiotics are starting to kick in.

The chest x-ray showed some haziness in her lungs, her right one more so. This could have been caused by a virus or it could have been that she aspirated when she vomited. As I understand it, chest infections are something pretty common with Batten kids and they can range in degrees of seriousness. It has been confirmed that she has pneumonia but I think we have caught it pretty earlier and certainly the doctors don’t seem overly worried about her. We will be staying in for a few days at least.

She has also been having some puffiness around her face and hands and feet but apparently this can happen with infections, they are keeping an eye on it.

Thank you very much for all your messages of support and love.  I will do my best to update when I can.



6 Responses to “Update”

  1. Mandy Bruton (nee - Ashby) August 6, 2012 at 10:50 am #

    Thinking of you guys always. Xx

  2. JessB (Kate's friend) August 6, 2012 at 10:51 am #

    That’s great to hear, good work all round. I’ll keep all 4 of you in my prayers!

  3. Danielle x August 6, 2012 at 11:10 am #

    Glad you slept well darl. You & Dandy both needed it. Looking forward to seeing the beautiful Matilda later on today. Love you all xx

  4. Natalie August 6, 2012 at 12:16 pm #

    Both Locky & my thoughts are with you all as you again spend time with Tilda at RCH. Wishing a speedy recovery for your precious angel

  5. Emma August 6, 2012 at 9:23 pm #

    Tilda is a real little fighter; she’ll knock this off too and will be back home again soon giggling at your singing Laura!! Take care, thinking of you all. E, J, B & C xxxx

  6. Stella F August 6, 2012 at 9:25 pm #

    Thinking of you guys xx

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