Monday Update

25 Jun

No results yet but we have been kept busy enough to not be stressing out about them too much.

No vomit! But we have had a few dramas with the new j tube. Because it is such a slow feed over such a long period of time, it tends to get blocked very easily. The first time this happened, I was very panicked and called the hospital straight away. The nurse I spoke to wasn’t particularly helpful suggesting that we would have to come in and that Tilda would have to have X-rays to find out what was going on. But then I spoke to the gastro doctor who had a different solution.

20120625-125559.jpg

Yep. Coke is the answer! Turns out it is very effective at unblocking feeding tubes. Slightly unnerving to think what it is doing to our insides.

We have had a few more issues with it and it will need to be looked at but at the moment, feedings are going ok.

The best thing about having the new feeding button is that finally, Tilda was able to swim again. This is something that she absolutely loved. There was a part of me that was concerned that she wouldn’t enjoy it as much as she used to but there was no need for my concern. As soon as she hit the water, she did not stop smiling and laughing. An absolute joy!

So things are ticking along. Trying not to think too much about results. Trying not to get too panicked about either outcome. Our mantra of taking each day as it comes is working very well for us right now.

Thank you so much to everyone for your kinds words and support throughout this time.

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17 Responses to “Monday Update”

  1. jackie June 25, 2012 at 1:23 pm #

    Love the video clip, gorgeous! fingers, toes anything else you can cross are all crossed for the outcome you all want to hear. Thinking of you all x

  2. Daryl June 25, 2012 at 1:32 pm #

    Great Tilda is back swimming and enjoying it so much . Ticking off the days and thinking of you all the way.

  3. Juliet June 25, 2012 at 1:37 pm #

    Coke is what garage mechanics recommend to take oil stains off concrete, so no wonder it’ll unblock a bitty tube. So glad it worked and so very very glad that Tilda still gets so much joy out of swimming! Fingers crossed for the results!!!! Lots of love

  4. Garry and Carole laird June 25, 2012 at 2:19 pm #

    Lovely to see Tilda smiling and enjoying her swimming. Positive thoughts for your results. Love to you all Carole and Garry

  5. JessB (Kate's friend) June 25, 2012 at 2:39 pm #

    Great to hear all the good things Laura – who would have thought Coke was useful for something?! And so super lovely to see a happy smiling Tilda playing in the water like a water baby!

    Still thinking about you and sending you happy thoughts xo

  6. Gavin and Jan June 25, 2012 at 4:55 pm #

    We are all thinking of you, hope to hear good news from Janet soon. Love Gavin Jan Helen

  7. Naomi Toots June 25, 2012 at 5:36 pm #

    I hope you’re receiving all my kind words via esp … this newborn business isn’t exactly a walk in the park is it? But I do read all your posts voraciously, and have everything crossed for your test results next week xx

  8. Anne Bunting June 25, 2012 at 5:47 pm #

    So good to see Tilda loving the water and giving you some distractions. A million thoughts and prayers and everything while waiting for the results. Lots of love Anne

  9. cally berryman June 25, 2012 at 7:24 pm #

    Swimming and smiling- it does not get better than that.
    Love the happy Tilda swimming.
    Wow.
    And coke for unpblocking tubes.
    Each day I learn so many new things.
    I remember an experiment with Coke Cola and ability to rot teeth.

    Fingers, legs crossed for you
    Love Cally Xx

  10. Sue Batagol June 25, 2012 at 9:36 pm #

    Bruce and I are going away this week and we want to wish you both the very best. Our thoughts will be with you. Great to see Tilda enjoying the water.

  11. Jo June 26, 2012 at 7:37 am #

    Great to see smiling in the water. I recall strangely medicinal properties of a diet coke, especially during early morning starts at Browns after a night of being early 20’s. love to you all

  12. Danielle x June 26, 2012 at 8:29 am #

    Love the video. Fabulous way for me to start my day x

  13. Aphrodite Doukas June 26, 2012 at 8:37 am #

    I’m so happy to hear everything is going well and Tilda is home.Great to see her enjoying herself in the water and smiling.Children are amazing they could smile through anything and find the joy in things even at the most trying times. My thoughts and prayers are with you and Simon as you wait to here news about this pregnancy. All my love xoxo

  14. Margaret BLack June 26, 2012 at 3:09 pm #

    We are thinking of you so much this week and sending you all our love from Switzland. Loved the photo of TIlda swimming and looking so happy.
    Lots of love and kisses
    Margaret and BIll

  15. Liz Thomas June 27, 2012 at 9:59 am #

    Tilda you have brightened our day. Andy and Liz xxxxx

  16. The radleys June 27, 2012 at 11:27 pm #

    Name something coke wont fix! Glad
    to see that super smile back on Tilda’s face, and also good to hear her beautiful mums laugh in the background! See you all soon!

  17. Heather Jackson June 29, 2012 at 2:15 am #

    Zaki just loved watching Tilda swim! xo

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