Further updates

15 Jun

I feel very rested after a very good night’s sleep at home last night. My procedure went very smoothly, a little bit painful but not too bad. We got to see bubs which was very nice and from that side of things, everything looks very good. We won’t expect the results until at least the 27th June so a bit of a wait ahead.

Plenty to keep our minds occupied with Tilda still in hospital and still vomiting. We came back to the hospital after my ultrasound and were immediately taken downstairs so Tilda could have one too. They wanted to check the position of the Jtube and make sure it was in the right spot. Unfortunately as she was in the middle of a feed, they were unable to see it so after fasting from 3am this morning, they did another one at 10am. And still couldn’t find it indicating that food is not moving through her system as fast as it should be. Whether this is the cause of the vomiting is unclear, we have not yet had a proper conversation with the doctors. Who are quite elusive. And frustrating.

There is a possibility of a new medication that might be able to help but we are waiting approval from her neurologist as it may interfere with some of her anti-seizure meds. It is used to help move things through her system.

*****************

Ok, the gastro team have just visited and we now have approval for the new medication which we will start straight away. We will also resume her feeds at a slower rate and take it from there. There is still no concrete answer to why she is gagging and vomiting but let’s hope this new med will help her.

Thanks to all for your thoughts.

Xox

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9 Responses to “Further updates”

  1. Lyndelle June 15, 2012 at 12:47 pm #

    Sending lots of hugs xx

  2. cally berryman June 15, 2012 at 12:51 pm #

    Holding every good thought for you all. And that Tilda’s vomiting is soon controlled.
    Warm hugs xxx

  3. FiFi June 15, 2012 at 3:18 pm #

    Sending you infinite amounts of love xoxoxoxo

  4. Jenna Abbott June 15, 2012 at 4:10 pm #

    Sending all our love, and big hug to Tilda-hope this new medicine starts to help! Well done you on getting through your procedure, we’re waiting with you……..love Jenna, Rob & Connor x x

  5. Helen F June 15, 2012 at 11:34 pm #

    Sending you much love as always and thinking of you all. Glad to hear you are feeling ok after the tests (wonderful, exciting and i’m sure nervous times ahead). Hope Tilda is out of the hospital soon as soon, and that Dora is keeping her smiling. Love xoxoxo

  6. jackie June 16, 2012 at 8:55 am #

    Thinking of you all and sending lots of positive vibes your way xxx

  7. Anne Ryan from Angliss Children's Centre June 16, 2012 at 5:16 pm #

    sorry to hear that Tilda is still vomiting. Hopefully this new medication will work. Tilda and your family are in out thoughts everyday. We miss her at Angliss

  8. Ken and Wendy Brown June 16, 2012 at 6:02 pm #

    Thinking of you and hoping for the very best for the 27th.
    We hope you start to get some positive results for Tilda and that her new medication helps.

    x Ken and Wendy

  9. Aphrodite Doukas June 17, 2012 at 3:31 am #

    my dear Laura even though I haven’t been on for a while you and Tilda are always in my thoughts and heart. Sad to here about Tilda’s vomiting bouts but I really hope the meds work to stop it and I hope they give you answers soon.I am so happy for you and Simon on your happy news on the new upcoming baby.I pray that it is good news and you have nothing to fear.Sending you lots of prayers and postive thoughts your way on both accounts.all my love

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