Hospital update

13 Jun

Well, I am certainly glad that I insisted that we spend the night. The surgery itself went well but it has been a very hectic night. Tilda started vomiting bile at about 7:30 then developed quite a high fever coupled with lots of seizure activity. Poor little mite was not at all well and looked miserable. Even Dora failed to distract her so you know shr was feeling particularly yuck. She was given panadol and nurofen as well as some IV fluids. Her rescue med – midazolam, was also administered which has in the past helped the seizures but sent her quite hyperactive. This time, it had the desired effect and she finally settled down to sleep at about 11:30.

They did a chest X-ray and took some bloods to see if they could figure it why she had a fever but everything has come back fine. Happily, she slept through both the X-ray and the finger prick.

Her feeds were started at about 1:00am, very slowly into her new J tube which bypasses the stomach and goes straight into the intestine and they gradually increased the speed. This stopped at about 6 this morning. Unfortunately, she has had another vomit which appeared to be all bile. The good news I suppose is that she has kept her feed down. She has had another small sleep and I am pleased to report that Dora has returned to being a brilliant hospital tool and Tilda is looking much brighter.

I doubt we will be going home today. We are waiting for the dietician to come round to formulate a new feeding plan and also the dr to see what happens next in regards to her vomits. They could just be part of a bug she had had as she has been a bit vomity at home as well. The frustrations of the not knowing.

I will update further when I have more to report.

Xo

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6 Responses to “Hospital update”

  1. cally berryman June 13, 2012 at 8:00 am #

    Dear Laura,
    My prayers and warm hugs are buzzing around you as I write this.
    I hope darling Tilda is settled very soon.
    Much love Cally Xx

  2. Nancy Morrison June 13, 2012 at 8:12 am #

    sending lots of hugs and wishes for all to settle soon!

  3. Jo June 13, 2012 at 9:05 am #

    What an epic night. Hope things continue to settle xxx

  4. Ann Falster June 13, 2012 at 10:45 am #

    Hi Laura, you are in our thoughts during little Matilda’s mighty big struggle. Delighted to hear of your pregnancy and hope the tests to be taken on Thursday will be all good. love Stig & Ann (ex Royal Garden, HK)

  5. Daryl June 13, 2012 at 10:58 am #

    A tough night Laura……hang in there. Could it be possible that as a result of having a bug, Tilda has been left with a post viral drainage down the back of her throat which causes her to gag and vomit ? Common and can take several weeks to clear. Probably not helpful but thought to just mention it as a remote possibility given your search for an explanation of her vomits. Just hope whatever the cause it all settles down SOON and she continues to brighten up. Thinking of you all and especially tomorrow and in the days that follow.

  6. Anne Bunting June 14, 2012 at 11:06 pm #

    Dear Laura,
    Have missed the last couple of blogs till just now – the roller coaster certainly continues with you guys. Hope today went well and we will all keep you in our thoughts over the next couple of weeks especially .love always Anne

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