A big week

11 Jun

After a lovely long weekend, we are heading into a pretty eventful week. Tomorrow, we take Tilda back to the Royal Children’s Hospital where she will have another general anesthetic and have her PEG changed to a GJ tube.
Unfortunately, the vomiting and gagging has returned with some vengeance so it is good timing and I am really hoping that this new tube will make a difference. We will be staying the night and getting used to the new routine, hopefully it will all go smoothly and we will be home by Wednesday.

Even with the vomiting, Tilda has been in really good cheer, with lots of laughing and kisses and cuddles. She is still fixated on Dora but I do sometimes manage to get her attention.

In other news, we are excited and scared and happy and nervous to let you all know that today I am 12 weeks and 2 days into my pregnancy. This is the usual time that these kinds of announcements are made and they are usually done with some relief that the ‘danger’ period is over. However, in our situation, this is not the case. This Thursday, I go into the Monash Medical Centre to have a Chorionic Villus Sampling procedure. I go in to find out whether Batten Disease takes even more from us. It seems like it will be relatively straightforward, and only take an hour or so.

We then wait.

Results can take up to two weeks. In my head, I have gone through each scenario a million times or more and can hear the emotion of the genetic counsellor as she says the words either ” I am so pleased to tell you…” or ” I am so sorry to tell you…..”. We are prepared as we can be for each outcome and have made our decisions, incredibly difficult as they are.

We can’t wait for it to be over. I have been waiting for this Thursday since finding out about the pregnancy over 7 weeks ago. You may or may not have noticed my decline in posting since that time! And of course, we can’t wait to know for sure whether this pregnancy can at last be celebrated fully.

Team Tilda has proved itself to be a formidable force to be reckoned with so we ask for your good thought both for Tilda tomorrow and for Thursday.

Much love



24 Responses to “A big week”

  1. nickm76 June 11, 2012 at 8:23 pm #

    I hope Thursday goes well for you – I can’t even imagine that process but we’ll be thinking of you guys in the Melchior household…

  2. Martin Fabinyi June 11, 2012 at 8:28 pm #

    Congratulations to you and Simon and lotsd and lots of love and luck. Martin xxxxx

  3. Clare June 11, 2012 at 8:30 pm #

    Hey Laura- I really hope everything goes well for you this week…..looking forward to drinks soon

  4. Jo June 11, 2012 at 8:32 pm #

    Wow! Fingers crossed for all of you. Let me know if you are up for a hang out the week after next. Johnathon and I want to give you a mammoth cuddle xxx

  5. Jon G June 11, 2012 at 8:43 pm #

    Congratulations guys. Hope Thursday goes perfectly.

  6. Jac June 11, 2012 at 9:05 pm #

    So chuffed for you!

    We understand to some very small degree the trepidation of waiting for the 12 week mark and holding your breath at every pregnancy-related thing for months on end, so I am right there with you, Laura.

    Will be sending you all positive thoughts for this huge week! No doubt Tilda will come through like a trooper like she always seems to.


  7. Louise June 11, 2012 at 9:36 pm #

    So happy for you Laura, that is fabulous news. Will be thinking of you Thursday. Louise xx

  8. phillip melchior June 11, 2012 at 10:13 pm #

    All our hopes are with you.
    lol from Rome
    Phil and Barb xx

  9. Sue Batagol June 11, 2012 at 10:19 pm #

    Surely luck has to be on your side this time. Congratulations to you both and good luck for both Tuesday and Thusday.

  10. Prue June 11, 2012 at 10:32 pm #

    Wow great news guys. So happy for all of you. Hope Tilda’s procedure goes well and that Thursday will go well also. Our positive vibes and thoughts are with you……. Xox
    Prue, Blair & Oskar

  11. Suzanne June 12, 2012 at 1:14 am #

    the hugest amount of love and best wishes to you all. Congratulations. Good luck to Tilda for her operation and my thoughts and love and with you for Thursday too. love S xx

  12. Margaret BLack June 12, 2012 at 1:42 am #

    So happy all has gone well so far. Be thinking of you from cold France over the next weeks.
    Lots of love MArgaret and BIll

  13. cally berryman June 12, 2012 at 5:39 am #

    Wonderful news about the pregnancy.
    I am hoping for the scenerio-” I am pleased to tell you.”
    Loved the photo of Tilda with her gorgeous face.
    Hope all goes well at the children Hospital Love Cally

  14. Lyndelle June 12, 2012 at 8:14 am #

    Sending lots of love and buckets loads of positive energy. Good luck today Tilda xx

  15. Juliet June 12, 2012 at 8:33 am #

    Best of wishes for Tilda’s procedure and fingers, toes and everything else crossed for Thursday!!! Lots of love to you all

  16. Ruth June 12, 2012 at 12:09 pm #

    Oh Laura, congratulations!! All my good vibes and thoughts are with both of you and Tilds.

    “I’m pleased to tell you” is being channelled by everyone that loves you!! xx

  17. Nancy Morrison June 12, 2012 at 2:03 pm #

    Wow sending you all my love and best wishes for all good outcomes! PS PLEASE call me any time to come back and shoot some more photographs for all of you.

  18. Daryl June 12, 2012 at 3:09 pm #

    Thinking of you all today and Thursday Laura, and every day as you await the results, then every day after that too………and hoping and willing you happy news on all fronts…….Love Daryl

  19. Diane June 12, 2012 at 5:44 pm #

    Goes without saying, your news is wonderful and I’ll have all toes and fingers crossed. Love, as always, Di.

  20. jackie June 12, 2012 at 7:42 pm #

    To Laura, Simon and Tilda, congratulations on your news and I have all fingers and toes crossed that all goes well on Thursday. I can’t imagine what you will be going through waiting for the results [do they really take 2 weeks????] But as you guys have shown, you are a strong team and whatever happens you have an amazing family and group of friends to support you. Good luck for a pretty big week. Lots of love xx

  21. mardi June 12, 2012 at 11:21 pm #

    wow Laura and Simon, such huge congratulations, I have all my fingers crossed the results are positive. lots of love

  22. Jan Marshall June 13, 2012 at 7:21 am #

    Hope all went well yesterday and the very best of luck for tomorrow.

  23. Ken and Wendy Brown June 13, 2012 at 10:36 am #

    Hi Laura and Simon,

    We wish only the very best for you both and for Tilda.

    x Wendy and Ken

  24. Benita crocker June 14, 2012 at 8:46 am #

    I think the Mother’s Group woudl be ready for another baby for sure!! Congratulations and fingers/toes crossed for today. love be xox

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