Hospital update

11 Apr

Still here. And will now be until Saturday. The new GJ tube will not be able to be done until June as her original PEG site needs that three month healing time. So we need to get her a feeding plan for the meantime and it is better to stay in and make sure it really works for her instead of going home and having more vomiting and have to come back in. We are heading to 3 lots of small feeds during the day and 1 continuous feed in the evening, from when she gets home from school to when we go to bed. This is so we can monitor and make sure she doesn’t aspirate. Eventually with the GJ tube, we will be able to do a continuous feed overnight as the risk of aspiration will have been minimised.

It is slightly odd being in hospital with a relatively well child. Certainly it is a good thing that she is chipper. The worst thing is the boredom. I have my work computer and have been able to do some work. I have also had lots of lovely visitors. Thank you for the food and wine!!


4 Responses to “Hospital update”

  1. morrisonpix April 11, 2012 at 4:36 pm #

    sending lots of good wishes that you will be home soon!!!

  2. JessB (Kate's friend) April 11, 2012 at 11:14 pm #

    Oh gosh, praying for you all. Boredom is really so difficult to deal with.

  3. Juliet April 12, 2012 at 8:40 am #

    Oh dear, what a bore for all of you! I do hope that all goes well and you can have some of your holidays at home! All my love

  4. cally berryman April 17, 2012 at 7:16 am #

    How is Tilda? How is the hospital wait?
    Love Cally Xxx

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