Easter in the hospital

9 Apr

Yes, unfortunately we are back in the hospital and have been since Saturday night. Tilda’s vomiting got to a point where she was getting dehydrated and we were very concerned. She had a full 12 hours on gastrolyte and then started back on her feed yesterday afternoon. After more vomiting at 4am this morning, we will be here until tomorrow at least while we work out a feeding plan that is going to work for her.

There are a couple of theories as to why this all happening, reflux, her recent cough but the current consensus is that her stomach is just really slow at moving things through and she is throwing up when she is full to the brim. She only managed to have 600ml over 14 hours yesterday before she threw up so clearly there is an issue. We are now at 30ml an hour for the next 24 hours and when all the drs and dieticians are back on board tomorrow, we will have a big discussion as to the plan ahead.
I think we are moving closer to a gj tube which, if we are able to do some feeding overnight, might not be so bad.

She is otherwise cheery and well which is good news.

Thought I should update with this photo showing just how cheery she is. Feels a bit fraudulent to be in hospital this happy but I am glad of it!

xox

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7 Responses to “Easter in the hospital”

  1. Alison Caldwell April 9, 2012 at 12:31 pm #

    Hi Team,

    thanks for the update, Matilda continues to inspire me, still cheery and well despite the challenges.I do wish the docs and dietitions could all be there for you today. I guess they need a holiday now and again. All the best with the new plan – Alison

    • teamtilda April 9, 2012 at 12:38 pm #

      Thanks Alison. I am eternally grateful for tilda’s cheery disposition! And her ability to watch endless hours of Dora and Maisy. It certainly makes hospital stays bearable. Thank you for the well wishes. Xo

  2. Jo April 9, 2012 at 1:03 pm #

    Sorry to hear you are in hospital. Hope things improve swiftly. Bless Matilda! what a spunky soul to maintain the cheery. Best wishes from me and johnathon xx

  3. Jan Marshall April 9, 2012 at 4:18 pm #

    Your battle is inspirational. Our prayers and very best wishes that Tilda’s feeding can be sorted out and that your life can go along without these major hiccups.

  4. Carole and Garry Laird April 9, 2012 at 5:55 pm #

    So sorry to read this Laura. Do they hope they can sort it out for Tilda very soon. Love to you all. Garry and Carole Laird

  5. Juliet April 10, 2012 at 12:27 pm #

    I am so sorry. I had been thinking of you all at Anglesea. I do hope this is sorted soon so you can enjoy the holidays. All my love.

  6. Anne Bunting April 10, 2012 at 2:03 pm #

    What a stunningly beautiful photo – if anything will keep your spirits up looking at Tilda’s beautiful smile will. Hope your stay in hospital isn’t too long and that the powers that be can come up with a solution
    Love Anne

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