On the radio!

29 Mar

I am pleased and delighted to report that Simon, Matilda and I will be on your local ABC radio station on The World Today program tomorrow afternoon. The show starts at 12:10pm and I believe we will be on during the second half. The very lovely Alison Caldwell came to visit us this morning, to talk about Matilda and to talk about Batten disease. Thank you so much to Di and her daughter Annie for facilitating this. We spent ages chatting and I am hoping that I didn’t babble too much and even more that it will raise some much needed awareness.

Thank you again so much to everyone who has donated – we have hit the $3500 mark so I have had to raise my target! Simon is in serious carb loading mode for the Tough Mudder event on Saturday which looks like it will be a lovely day – photos to come!

Tilda is in excellent form – cheery and vomit-free since Sunday! We have a catch up appointment on Monday afternoon with our gastroenterologist to talk about possible reflux and we are still working with the dieticians to find a workable feeding regime.

More after Saturday!



5 Responses to “On the radio!”

  1. Jo March 29, 2012 at 3:22 pm #

    Good work! Will tune in. Initially read that Simon was ‘crab loading’ and thought surely that Tough Mudda is tough enough. Pleased that voms are diminishing. Good luck with the race, and have an awesome day Sunday.

  2. FiFi March 29, 2012 at 3:24 pm #

    Great ! I’ll be listening !

  3. Carole and Garry Laird March 29, 2012 at 3:32 pm #

    That is great Laura, sorry I am not in Melbourne to hear you. Good luck to Simon for Tough Mudder, we look forward to hear how he went. Glad also to hear Tilda is in good spirits. Love Carole and Garry

  4. JessB (Kate's friend) March 29, 2012 at 10:11 pm #

    How great that Tilda is feeling so much better!

    And you know how sometimes you hear something once, then it’s suddenly everywhere? I keep hearing about Tough Mudder, and know a few people who are doing it. All the best to Simon, I’m sure he’ll have a great time and do well.

    And good luck for the radio interview!

  5. Juliet March 30, 2012 at 6:48 am #

    Go Simon!!! And looking forward to hearing the interview. Great that the vomiting has bee reduced. Hoping that keeps going. Much love

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