Laughter and smiles

19 Feb

I am so pleased and delighted to report that once again, our house is filled with squeals of laughter and happy smiles. It is an enormous relief to have our cheery Tilda back! Clearly, she is no longer in pain, the nasal tube is no longer annoying her, we have increased her calories so her tummy is nice and full and of course, we are out of hospital which is always a mood enhancer!

She is back to school and all going really well. We only have one tiny issue at the moment. Her sleep has gone to poo. I don’t know what it is but she is waking up through the night, tossing and turning and thrashing about. I have a feeling that her nighttime seizures have increased and are actually waking her and keeping her up. Thankfully we have an appointment with a dr on Tuesday who is somewhat familiar with Batten Disease and may be able to advise us.

But to be honest, I can totally cope with the lack of sleep because I am so over the moon to hear that laugh once again!


14 Responses to “Laughter and smiles”

  1. Cally February 19, 2012 at 6:27 pm #

    What fabulous news.
    A happy Tilda makes us all happy.
    So glad the PEG going well.
    We all knew you would manage beautifully with the PEG.

    Love Cally Xx

  2. Kylie February 19, 2012 at 7:01 pm #

    I LOVE a happy Tilda post!! That’s made my day.
    Good girl Tilds, so glad you’re happy.

  3. JessB (Kate's friend) February 19, 2012 at 7:45 pm #

    Oh gosh Laura, I’m so rapt to hear that! I’ve been thinking lots about all 3 of you this week, and hoping that everything had settled down. I’m really glad to see and hear her laughing, that is just the best sound.

  4. Jac February 19, 2012 at 7:45 pm #

    Yay tilda!

  5. Jon February 19, 2012 at 9:54 pm #

    Excellent news

  6. Juliet February 20, 2012 at 6:53 am #

    Wonderful news! Hope the sleep question can be resolved. You need to look after yourself, too.

  7. Irene Davey February 20, 2012 at 7:22 am #

    Thank the whomevers, this is such wonderful news…now all you need to do is bring in more chocolate to work so we can…well I can…help you celebrate ;-))

  8. Carole and Garry Laird February 20, 2012 at 11:38 am #

    Wonderful to read that Tilda is much happier.

    Love Carole and Garry

    • Kym February 20, 2012 at 12:58 pm #

      Hello, I dropped off for a while there. Glad to read all tildas news over dec, jan and feb, Been a rollercoaster for you guys but you seem to have weathered a few storms. Im happy for you to hear her laughter is back

  9. Jo February 21, 2012 at 7:32 pm #

    Great to hear that laughter. Ace to hear you guys are doing well. Think of you heaps. Let me know when you feel like a visit.

  10. Anne Bunting February 21, 2012 at 10:51 pm #

    Wonderful news – its about time the tide turned for you. Lots of love Anne

  11. Alicia Brown February 22, 2012 at 12:12 pm #

    So happy for you all! What a relief!

  12. John and Esther Smith February 23, 2012 at 2:15 pm #

    So pleased to know that all went well – hope to see you soon….John and Esther

  13. Didi February 27, 2012 at 6:08 am #

    What a beautiful little girl you have.What a treasure. That laugh is a pleasure to hear glad everything has worked out.I wish all of you the best life has to offer all three of you deserve that.lots of hugs your friend forever

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