We are home!

15 Feb

After rather a lot of faffing about, we are finally home! Tilda was smiling and laughing when I got to the hospital yesterday afternoon which was wonderful – clearly she is feeling a lot better.

I wrote when we came home with the nasal gastric tube that it was like having a newborn again and with the PEG, I am feeling this x1000. The foreignness of the tube, the feeling that I haven’t quite worked out how to hold Matilda so she is comfortable, the fact that I still haven’t worked out what her new noises mean. All of this has been on my mind but after a pretty good sleep last night – and it was wonderful to be able to snuggle up with her again – I have woken up this morning feeling positive and ready to get on with it. I have no idea how this is all going to work, especially when she goes back to school tomorrow. Feeds are now taking an hour and we have to give her an antibiotic 1/2 an hour before she eats. Some early risings ahead! But I am very hopeful that this PEG will be worth all the drama that it has caused.

On an unrelated sidenote, I would like to give a huge shout out to the very lovely people at Skechers (makers of those shoes!). I sent them an email the other day as I wanted them to know how much joy those shoes bring.

I received the following reply

Hi Laura,

Firstly thank you so much for taking the time to share your story with us. What an awful disease for someone so young to have to face. Matilda is absolutely gorgeous and an inspiration. It makes us so happy to hear that her Skechers make her smile, which is why we would love to send her another pair to play in! If you could get back to me with her shoe size and your day time address that would be amazing and we can get some in the mail for her!

Say Hello to Matilda from all of us at Skechers!

Best Wishes,


How wonderful!! Thanks Skechers!!



13 Responses to “We are home!”

  1. Christine Grover February 15, 2012 at 10:19 am #

    Hey, Just wanted to send love, so pleased you are all home again. Great news about teh Sketchers, love random acts of kindness!

    We think about you all every day and send our most positive vibes.


  2. jac February 15, 2012 at 11:03 am #

    Brilliant – both the successful return home and the skechers!

    I love that some companies are actually “human” (if that makes any sense).

    Restores faith in things, I reckon.

    Love to you all


  3. Nancy Morrison February 15, 2012 at 11:42 am #

    yeah!!! so glad to receive the good news, kisses to all of you. OH fantastic about the new shoes too!!!

  4. Margaret February 15, 2012 at 11:53 am #

    So pleasedyou are home and Tilda looks so beautiful. What a touching letter from skethers. Good luck with the feeding it does sound complicated

    Lots of love

  5. Juliet February 15, 2012 at 12:07 pm #

    Great news that Tilda is home and happier! Hopefully, the PEG feeding will get easier as you get more used to it and the people at school can cope ok. And how very kind of the people from Skechers! What a nice gesture. Love

  6. Cally February 15, 2012 at 6:37 pm #

    How fabulous that Tilda is home.
    Such good news.
    What a gorgeous photo of Tilda- she is a beautiful girl.
    Good luck with the PEG tube and feedings.
    I am sure you will be fine.
    Love Cally Xx

  7. Anne Bunting February 15, 2012 at 7:19 pm #

    What a beautiful photo! So glad you are home again and the shoe story shows just how many people are touched by Matilda’s story. I am sure with your commitment you will be able to manage the PEG after a bit of trial and error. Love Anne

  8. Stella F February 15, 2012 at 10:52 pm #

    What a gorgeous picture!!!
    And amazing to hear of the generosity of Sketchers. Love stories like that xx

  9. Daryl February 16, 2012 at 9:11 am #

    Lovely photo of Tilda……she looks beautiful and very happy and content.

    If anyone can manage that PEG and the feeding ( and many do ! ) , its you Laura ! And hopefully when it settles down it will be a big feeding PLUS for Tilda, and for you and Simon.

    Yes….a very thoughtful gesture by Kitty and Skechers to bring more smiles and joy !

    Love Daryl

  10. Carole and Garry Laird February 16, 2012 at 8:34 pm #

    It is wonderful that you have Tilda home. Love Carole and Garry

  11. Benita crocker February 17, 2012 at 3:47 pm #

    Cute photo Laura and good work with the sneakers – do you think it would work it I tried it with Dianna Ferrari? Hope you are all travelling OK xo

  12. Rebecca M February 17, 2012 at 6:34 pm #

    Beautiful photo! Glad to read she is back home x

  13. Terri Beggs February 21, 2012 at 8:14 pm #

    Wonderful laughter and beautiful smile, so glad Tilda is home and sharing the love,
    Terri & Roger

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