It is important to complain. It hopefully allows for an improvement in whatever situation. And for us, that was the case. I got hold of our pediatrician this afternoon and voiced our concerns about yesterday’s misadventures. She was very apologetic and understanding but better than that, she took steps to improve the situation. We now have another appointment next week with the head doctor to fully explain what will happen in the PEG surgery and to examine Matilda. There was a misunderstanding from my end in my desire for a confirmed surgery date. That apparently was never going to happen – we are now on the waiting list and may have to resort to a Nasal – Gastric tube if Matilda’s weight becomes a serious concern.
Which unfortunately at the moment, it is. She isn’t eating much of anything except her Vitabrits for breakfast ( I am thankful for that at least) and her swallowing appears to be troubling her. I am glad that we have another appointment and can hopefully get some more concrete plans in place.
Last day of school tomorrow! Matilda came home yesterday laden down with amazing artwork, photos, presents and crafts. It was an absolute treasure trove and I am still sorting through it. We also got her report card! A snippet:
Matilda has settled very well into school routines and activities. She eagerly greets friends and staff. Matilda has a great sense of fun and a wonder laugh. We are so pleased that she has been a P10 girl this semester.
We are very proud. 🙂
teamtilda 
So pleased you got some more clarity from your pediatrician and fingers crossed for a better visit next time. Absolutely LOVE the montage of photos from school – she just seems to have a ball there huh? So fabulous. xoxo
those photos are great – love the grin! Fingers crossed for your next appointment…
what gorgeous photos of Tilda at school – it’s wonderful to see her so happy and so engaged.
it’s great that you were able to work through the mess of the hospital visit and to find your complaint got results – but it’s just atrocious that you needed to have to manage all that and that you now have to be on a waiting list for the surgery. let’s hope the wait is not tooo long!
I do wish you and Tilda and all the family a really happy day on Christmas day – how special for you all to be together. much love Jennie
So pleased that you are able to finish the school on a high note. Matilda really is an amazing little girl who is blessed to have such fantastic parents. Her winning smile and sheer guts and determination are obvious in the gorgeous photos. love to you all especially at Christmas
Anne
I’m told by my daughter-in-law who works at the hospital that, since the move, there have been a number of complaints similar to yours Laura and that steps are being taken to address them. Lets hope so ! Unfortunately architectural ” vision ” does not always “gel” as well as it should with hospital/medical procedures and patients needs !! So its essential to complain about such important issues as occurred in order to draw attention to them and to get an appropriate outcome. As you did through the pediatrician ! Do hope it works more smoothly and efficiently for you from now on.
Really lovely school photo collage……and glowing school report. Tilda looks very busy and happily engrossed in a variety of activities.
Finally our thoughts and love are with you all for a happy Christmas and fun holidays to follow…………….Daryl
What a wonderful school, the lovely photos of a happy Tilda say it all.
I hope you get some clarity about the Pegs feeding.
Happy Christmas to fantastic parents and a marvellous little girl! Love John and Esther