More Wish Day Photos!! (and an annoying hospital visit but yay for photos!)

20 Dec

First of all, I would like to give a huge enormous thank you to the very lovely Kirsty from ruby d photography who so graciously donated her time and talent to Matilda’s Magnificent Wish Day!! I have updated the web album with all the new shots which are just wonderful.

More Matilda’s Wish Day Photos!

We are still coming down from the day. 🙂 There are some absolutely gorgeous ones, especially of all the kids. Thank you so much Kirsty!!

Coming home to the photos was a welcome relief from the annoyance of our earlier hospital visit. I understand that, with the new move, the Royal Children’s Hospital is currently in disarray but the new system for seeing a specialist at a clinic is nothing short of awful. Doctors from all genres are lumped together in one waiting area with receptionists who have to know what is going on with all of them. The waiting areas are packed to the brim with parents, children, prams, wheelchairs and when doctors come out to call for a patient to come in, you have to strain to hear over the noise to find out if they are calling for you. After an hour of waiting, we finally got called. But only for Matilda to be weighed and measured. We went back out to the waiting to strain to hear for the next time her name was called.

I have been dreading this appointment. I have been putting off the idea of a PEG even though I know that ultimately it is the best thing for her. So I wasn’t really going into the appointment in the best frame of mind. What I did want out of it though, was answers and a date. My mood did not improve when the ‘specialist’ who actually was a visiting trainee, first of all kept referring to Matilda as ‘he’. Then didn’t really seem to know why we were there. Or anything about Matilda and her history. Then did not even examine Matilda at all (why the hell did we have to bring her?). Then went off to talk to a consultant, who was busy. Then came back and said that they will liaise with our pediatrician but it will probably be 3 to 6 months. We left feeling incredibly frustrated with what was a complete waste of time. We have left messages for our neurologist and our pediatrician who will hopefully get back to us in the next couple of days to let us know what is happening.

Grrr.

But as I said, yay for photos! And this one is my favourite.

Thanks for letting me vent. I am feeling better than I did earlier. Photos, and wine, have helped! If I don’t get a chance to write another post before –

MERRY CHRISTMAS EVERYONE!!!! Wishing you all a very happy and safe Christmas and New Year.

xoxoxo

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6 Responses to “More Wish Day Photos!! (and an annoying hospital visit but yay for photos!)”

  1. kylie December 20, 2011 at 8:19 pm #

    What an annoying way to spend your afternoon….you’d think that a redesigned children’s hospital would……..have everything set up fantastically well for kids??? Roll on Christmas.

  2. Alex December 20, 2011 at 9:22 pm #

    Laughing & crying at the photos!! It was just such a wonderful & beautiful day. The photos capture it all: the emotions, the friendships, the love. I think of it all the time.

    Such a pain about the hospital. One can only hope it gets better.

    Lotsa love
    xxxxx

  3. Juliet December 21, 2011 at 8:06 am #

    Wonderful photos, though I ‘ll be wearing gloves at all times from now on!) What a PAIN about the hospital. Let’s hope it’s the result of shortlived adjustment issue and that your pediatrician and neurologist can put your mind at ease (and perhaps give the hospital people a serve) soon. Love to all of you.

  4. kylie December 21, 2011 at 9:08 am #

    Oh and the contrasting photos of Thomas and Charlie will go into family history! Thomas jumping high on the trampoline, Charlie with a lapful (and mouthful!) of junk food and a can of Fanta! That’s my boy…..

  5. Martin Fabinyi December 21, 2011 at 3:13 pm #

    Love the photo Martin xx

  6. Cally December 24, 2011 at 6:28 am #

    The photos are excellent. Such a terrific reminder of a fabulous day.
    Merry Christmas and big hugs all round. Xxx

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